The Lifetime service is for families where a child has a life threatening, life limiting condition (not including malignant conditions).
The Lifetime Continuing Care Team also provide a service for families where a child has complex health needs that require specialist, often technology dependent support at home, provided through a care package.
We offer a nursing and psychology service within the community for children with life threatening and life limiting conditions, which are non-malignant.
We work closely with the multi-professional team to support the family in providing care at home and in other community settings. Children who are accepted for the Lifetime service will have an assessment of their healthcare needs and a plan of care made with the child and family to meet these needs. This care plan is regularly reviewed and amended according to the child’s healthcare requirements at the time
Visits are usually at home. These are individually arranged with each family and are made at prearranged times.
Referrals can be made parents / carers as well as professionals.
Referrals can be made for a child with any life limiting or life threatening condition where the child is not expected to live beyond 40 years of age (apart from children who have cystic fibrosis or cancer as they have their own specialist teams based at Bristol Children’s hospital).
Please use the service referral form available on the right-hand side of this page under ‘downloads’ or use the contact telephone number provided.